National Rare Disease Awareness Day

February 29 is National Rare Disease Awareness Day. To recognize the day locally, Rare Disease Day Spokane will host an advocacy event to draw attention to rare diseases as an important public health issue.

7th Annual Rare Disease Day Spokane Speaker Event

  • Date: Thursday, Feb. 29
  • Time: 12:10 – 1:00 p.m.
  • Location: NURS (Nursing) 105, WSU Spokane and Zoom

This is an opportunity for patients, caregivers, medical professionals, health sciences students, educators, and advocates to come together to learn about rare diseases and what it’s like to live with or care for someone with a rare disease.


  • Kimberly Aldinger, PhD, geneticist and neuroscientist, twin mom, rare patient advocate
  • Io Dolka, MS, chief care advocate, patient advocacy leader, improve diagnosis cheerleader
  • Sanath Ramesh, MS, CEO of CuresDev, health care change maker, rare disease dad

Sponsored by the Department of Speech and Hearing Sciences and facilitated by Mary McDirmid, parent and rare disease advocate.